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We will tell about services that are more available to intractable diseases

The last update date:

 

About consultation organization

 

About consultation such as trouble or anxiety from the patients with intractable disease (including impaired person due to intractable disease) and family, member of intractable disease consultation support, health nurse, member of Work support accept. We perform reporting, Work support about system such as disability certificate or disability pension.

Saga sets up and authorized NPO corporation Saga intractable disease support network catches trust from the prefecture and runs.

  • Inquiry counter

   〒840-0804 2-6-10, Konohigashi, Saga-shi

   TEL: 0952-97-9632 FAX: 0952-97-9634

   E-mail: [email protected]

  • Consultation method: Telephone, interview, email, visit
  • The consultation date and time: From Tuesday to Sunday from 10:00 a.m. to 7:00 p.m.
  • Closed day: It is year-end and New Year on Monday
 

(2) Intractable disease medical care coordinator

We post intractable disease medical care coordinator in intractable disease medical care base Hospital (the Saga University medical department hospital) and establish consultation counter. We are consulted about patient, family, person of medical personnel about consultation, caring at home, medical care and hospitalization about medical treatment.

  • Consultation method: Telephone (0952-34-3605)
  • The consultation date and time: From Monday to Friday from 9:00 a.m. to 5:00 p.m.

(3) Medical consultation

  In Public Health and Welfare Office, we perform consultation business by specialized doctor, nurse, social worker about intractable disease. We perform understanding of illness and reduction of anxiety, consultation about medical treatment life.

  • Consultation method: Interview
  • The consultation date and time: As consultation day is fixed and needs reservations, please refer to Public Health and Welfare Office of neighborhood.

        Central Saga Public Health and Welfare Office: 0952-30-1691 

      Tosu Public Health and Welfare Office  :0942-83-3579

      Karatsu Public Health and Welfare Office  :0955-73-4187

      Imari Public Health and Welfare Office   :0955-23-2101

      Kito Public Health and Welfare Office  :0954-22-2105

  

About medical expenses

(1) About the furtherance of specific medical expenses (designated intractable disease) (window: Public Health and Welfare Office)

   When symptom meets constant requirements including higher than degree in that had a diagnosis of designated intractable disease, we can receive the medical expenses furtherance.

 

(2) About the furtherance of children chronicity identification illness medical expenses (window: Public Health and Welfare Office)

   They suffer from children chronicity identification illness, and children who are degree of state of illness that the Minister of Health, Labour and Welfare sets under 18 can receive the medical expenses furtherance. 

 

(3) Health care service to other children with a disability (person)

 

About the welfare service

(1) About obstacle welfare service

  "People such as intractable diseases" were added by person with a disability synthesis support law enforced in April, 2013 in range of person with a disability.

  With or without possession such as disability certificates, receipt of obstacle welfare service admitted that it is necessary is possible if we correspond to target disease.

  (there is service that is not available to patients with intractable disease without certificate of the physically disabled partly)

  • Service that we can receive is decided by Surveys. Service may not correspond by age, income, support division.
  • There is user burden depending on service.

 

※When there is Nursing insurance service equivalent to obstacle welfare service from contents and function of service among target Nursing insurance payment, we give priority to insurance benefit to suffer from principle Nursing insurance service and are to receive

(2) Saga saposenta breath breath building (Saga at-home life support center) We open with the other window(external link)

 

(3) About disability certificate

 

(4) About pension, medical treatment, mutual aid system

 

(5) About service that is available to patients with severe intractable disease

When severe intractable disease that it is undergone at home medical treatment cannot temporarily receive care in being at home due to rest (resupaito) of person cared for, intractable disease medical care coordinator adjusts to medical institution that the prefecture contracted with with medical institution to be able to be hospitalized temporarily.

  • Use of Saga at-home respirator patient temporary nursing at home treatment study business

For the patients with intractable disease to need special consideration about attaching respirator, it is business that 260 times a year are available to as limit per patient one about temporary nursing at home more than the number of times that can calculate temporary nursing at home medical expenses in the medical service fees.

 

About Work support

(1) Work support related information

(2) Saga intractable disease consultation support center We open with the other window(external link)

  We post two members of Work support in the Saga intractable disease consultation support center and perform consultation about working.

 

(3) Patients with intractable disease employment supporter

  "Patients with intractable disease employment athletic supporter" is located in specialized support section of HelloWork Saga and performs consultation about working of the patients with intractable disease. (ten days a month)

  We talk in intractable disease consultation support center house, every Thursday and cope. (need reservations)

  Telephone: 0952-24-4510 (support section specialized in HelloWork Saga)

 

 (4) Saga industrial health synthesis support center We open with the other window(external link)

     Free perform the workplace and adjustment support with patient (worker) in connection with consultation correspondence or medical institution to promote treatment of illness such as intractable diseases and coexistence with career.

 

About patient, family society, gathering

(1) Patient, family society acting in Saga

   Patient family society performs activities such as medical lecture, exchange meeting, issuance of bulletin.

   Patient society in the prefecture is as follows.

   For more details, please ask intractable disease consultation support center (0952-97-9632).

  • Meeting Saga Branch of Parkinson sick friends of the whole country
  • Meeting Saga Branch of collagen sick friends of the whole country
  • Kyushu IBD forum Saga IBD enshokai (inflammatory bowel disease)
  • Association of ALS Saga Branch in Japan
  • Meeting honehone club of Saga spinal ligament ossification symptom friend
  • Saga pigmentary degeneration of the retina patient society
  • Meeting Saga Branch of Japan rheumatism friend
  • NPO corporation DM use Saga
  • NPO corporation IDDM network
  • Nonprofit foundation Japan Epilepsy Association Saga Branch
  • Patients with Saga kidney disease contact meeting We open with the other window(external link)

 

(2) Gathering of Public Health and Welfare Office holding

   We hold gathering of patient, families in Tosu Public Health and Welfare Office, Imari Public Health and Welfare Office regularly.

   Patient, family society goes on a business trip and may hold exchange meeting in each district. Please refer to Public Health and Welfare Office of neighborhood.

       Central Saga Public Health and Welfare Office: 0952-30-1691 

     Tosu Public Health and Welfare Office  :0942-83-3579

     Karatsu Public Health and Welfare Office  :0955-73-4187

     Imari Public Health and Welfare Office   :0955-23-2101

     Kito Public Health and Welfare Office  :0954-22-2105

 

   It is made with friend and, in Saga intractable disease consultation support center, supports exchange meeting for the purpose of information exchange, activity, start of patient society.
 
 

For emergency, disaster

(1) Evacuation action supporter list required
When disaster occurred, for "evacuation action pivot supporter" having difficulty in evacuating by oneself, it is list for help and safety confirmation such as evacuation, consideration at refuge to be performed safely quickly while local.
   For more details, please refer to the welfare person in charge of living municipalities.
 
(2) Notebook anti-disaster measures-response at disaster
 
    We made as enlightenment material of the preparation at the time of disaster of person who used respirators in designated intractable diseases.
    It is available to confirm necessary preparations and information in the case of emergency.
        In addition, please inflect as reference materials for evacuation action pivot supporter individual support program planning.
       
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(3) Emergencies medical care, support notebook
 
   It is notebook for necessary support to reach the person by the patients with intractable disease presenting with medical institutions at the time of emergency and disaster.
   In addition, there is information such as lists of necessary articles of mention and carrying out of contact information, and it is notebook which is useful at the time of disaster.
   Distribution goes in each Public Health and Welfare Office.
 

About other information

(1) Intractable disease information center We open with the other window(external link)

In intractable disease information center, we provide information such as summary of commentary of disease that Ministry of Health, Labour and Welfare aims at for intractable disease conquest study business and various systems and various consultation counters, contact information.

(2) Saga parking soft-headed mitt systemWe open with the other window

To secure the appropriate use of parking space, among person with impaired body, elderly person, expectant mothers, intractable disease patients "walk issues permit in difficult".

(3) Universal design

 

(4) Health promotion of tooth and oral cavity

 

(5) Intractable disease handbookWe open with the other window

 

 

 

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Inquiry
(ID: 54959)
Saga prefectural government office (corporation number 1000020410004) 〒 840-8570  1-1-59, Jonai, Saga-shi   Tel: 0952-24-2111 (main)     
Copyright© 2016 Saga Prefecture.All Rights Reserved.

Saga prefectural government office (corporation number 1000020410004)

〒840-8570
1-1-59, Jonai, Saga-shi
Tel: 0952-24-2111 (main)
Copyright© 2016 Saga Prefecture.All Rights Reserved.